Tess' story
Tess has Treacher Collins Syndrome. For the first 18 months of her life she was fed through a tube. She was taken away from her parents 1 hour after her birth. She had her first operation at 2 months of age and spent the first 5 months of her life in hospital. Tess has had 12 operations in total and has decided that she does not want any more.
CleftPALS Victoria
CleftPALS Victoria is a wealth of knowledge and informaton about the cleft condition. They are a group of volunteers - mostly parents and cleft affected adults - who understand what parents and families are going through. They want to help you.
Treacher Collins Syndrome
Amie was born with Treacher Collins Syndrome. Hers is an inspirational story and we are lucky that she has shared her experience with us. Read how Amie learned to deal with Treacher Collins growing up, as an adolescent and how she made it through to adulthood with an enormous amount of courage and self respect.