Case Study - Glen's Story
Glen was born with a severe cleft lip and palate and ended up with severe growth disturbance involving his face and nose. Glen's facial bones and jaws have been completely realigned and his nose rebuilt with a rib graft.
Jigsaw Foundation. News and Events
Family Day at the Royal Children’s Hospital, Melbourne
19 May, 2016
Dr. Zerina Lokmic, Nurse Scientist and Head of the Vascular Biology Laboratory at the Murdoch Children’s Research Institute, will be running an information day for children and adults with vascular anomalies and their families at the Royal Children’s Hospital in Melbourne on Saturday 21st May, 2016 from 1pm to 4pm. There will be several talks about the latest developments in the treatment of vascular anomalies and the opportunity to meet other families and talk about the problems of living with a vascular malformation. If you are interested in attending please contact the Genetic Support Network of Victoria on (03) 8341 6315 or firstname.lastname@example.org. ..
New Board appointment for Jigsaw Professor, Tony Penington
19 May, 2016
At the recent General Assembly of the International Society for the Study of Vascular Anomalies (ISSVA), Jigsaw Professor Tony Penington, was elected as a board member of the Society. ISSVA is the peak international body for the study of vascular anomalies and hold their meetings every two years. This appointment reflects Tony’s standing in the international vascular anomalies field, and will extend Australian influence in the direction of research and treatment of these conditions...
The Australasian Vascular Anomalies Network
01 Mar, 2016
Vascular anomalies affect about one in ten children. Caused by an excessive growth of blood vessels or lymphatic vessels in one part of the body, the most common type are small localised birthmarks known as ‘strawberry naevus’. Small birthmarks of this sort are usually easily managed, and many require no treatment at all. Larger birthmarks, and more severe vascular anomalies including Arteriovenous Malformations (AVM), lymphatic malformations (cystic hygroma) and venous malformations, can cause lifelong disability and the psychological and physical consequences for affected children can be severe. ..